Tuesday, August 25, 2009

Thank you for everything...


A week has passed since my father died, and sadly, life goes on without him. We had such a great turn out for the visitation and the service...over 600 people altogether. The turn out for the golf outing was great too, as you can see by the picture.

We hope you know how much we have appreciated all your cards, phone calls, emails and hugs. They will get us through the bad days. We plan to print this blog and make some sort of book out of it...a remembrance of the struggle and heartache, but more importantly, the support of family and community.

I may not post to this blog again, but it will remain up and active if anyone wants to leave a memory about a great man.

Tuesday, August 18, 2009

Tee Time Tribute

Many of you know Les loved playing golf and had a standing tee time with several close friends every Thursday at 5:07pm. As a way to honor his love of the game, we are extending an invitation to pay tribute to Les at the Country Club on Thursday afternoon. Please join us at the Ashland Country Club at 4:45pm, Thursday, August 20th. Everyone will be given a golf ball and a sharpie to write your name on it. Beginning at 5:07, everyone will have an opportunity to tee it up for Les and drive the ball down the fareway (or rough, in my case). Once everyone has had their turn, the golf balls will be collected and given to Mom. So, please consider joining us for this Tee Time Tribute to a man who loved the game. Thanks!

Monday, August 17, 2009

Information on Services

Thank you so much for the wonderful comments on the blog today. They are treasured and I know we'll continue to read them over and over as the days/weeks go by.

These are the arrangements we've done so far... The visitation will be held at Marcy Mortuary (104 N. 15th) from 5pm - 8pm on Wednesday, August 19th. The funeral services will be held at American Lutheran Church (1941 Silver Street) on Thursday, August 20, at 10:30am. A luncheon will follow at the VFW Club (102 S. 24th) after the visit to the cemetery.

Mom seems to be doing okay and we continue to be very well fed and supported. Thanks for checking in for details and we hope to see you to celebrate the life of a great man.

17 Lives On

It is with mixed emotions that I write this...a heavy heart and one that is filled with joy. My father, Leslie Paul, is in a better place. At 3:05 on August 17th, Les took his final breath with Mom, Natalie and I holding his hands. There was no pain, just a last breath during a prayer Natalie was giving.

On the 17th. So many people predicted it would be today. For those of you that don't know the story of 17 with Mom and Dad, here is brief rundown... Les was born on June 17th. Carolyn's birthday is April 17th. Their first official date was on August 17th - 51 years ago today. They got engaged on October 17, and married on April 17th. 17 has shown up in their lives in license plates, addresses, football jerseys, etc. Les knew Mom was a "numbers person" and this would make a fantastic ending to a wonderful story.

There are no plans made at this time. We ask that you remember Les with a smile, as he was so quick to give one to other people.

Sunday, August 16, 2009

Update 2...

Les continues to prepare for his new adventure. His pulse is down to 60 and his respirations are down as well. We've had lots of visitors today and Mom says she is more at peace today. We are thankful for all the visitors, phone calls, and food. We appreciate your positive thoughts and prayers.

Update...

After a shower and a nap, I can write a little more. Les remains the same. They've stopped taking his blood pressure and pulse oxidation since they are undetectable. His pulse is faint and fast...sometimes up between 120 - 140 beats per minute. They continue to give the morphine regularly, so he is not restless or in any pain. His fever comes and goes; it is currently 101˚F.

Obviously, the timetable the nurses initially thought was off. They think because he is so young, his heart is just not ready to give up. (It's all that chicken Mom made him eat all those years after his stints!) His body is showing some signs of shutting down, but again, it is all up to God.

Mom is very emotional, as expected. Last night she got about 2 hours of sleep in addition to her one the night before. We did get her to go home and take a shower, so I think she feels better. Nat and I have left the husbands to take care of the kiddos and all the wonderful food that our friends and family have brought over. We are continually stuffed! :)

Visitors are welcome...especially if you go to my house and eat some delicious food! We've said our goodbyes many times, so if you'd like to come and say yours, please feel free.

Thank you one more time, for the outpouring of love and support you've shown our family. God Bless.

His fight continues...

Les continues to be with us. Nothing has changed, other than now we are even more exhausted. More when something changes.

Saturday, August 15, 2009

When is God's time?

Les continues much the same. His blood pressure and pulse are basically undetectable. He has begun having some tears rest in his eyes. We have all given him our blessing to "go to the light", but he continues to hang back in our earthly world. The hospice nurses believe (as they have for hours) that it is close, but that it is ultimately in God's time. Mom is exhausted. She only got about an hour's sleep last night and refuses to lay down on the other twin bed in his room. Please pray for Mom, and for Les to begin the feast in the house with many rooms.

Still with us...

Such a long night. Mom, Nat, Terry, Dan (until he went home to sleep with the kids), and I stayed throughout the night in Les's room. His breathing continues to be very labored and he had a fever of about 103˚F in the middle of the night. He seems much less congested and they continue to give him pain meds every hour. Thank you for your comments and for checking in.

Friday, August 14, 2009

The time is near...

Based on several symptoms Les is showing, the hospice nurses don't think he'll be with us too much longer. His breathing is becoming more labored as his lungs are filling up with fluid. His hands and arms are cold to the touch and he isn't responding.

We are so thankful the hospice nurses are making sure he is in no pain and is being cared for with such dignity. We had lots of family here tonight for a prayer service with Pastor Lori...Mom's brother Mike and his kids, Kim and Jeff, Tom and Nancy, Judy, Deb and Jodi, and of course Nat's and my families.

We are also so thankful for the outpouring of support we have received during Les's illness. We will continue to need your prayers and support as Les moves on with Jesus and we are left behind for now.

More news...

This morning while Mom and Nat were gowning up, the aide that was in with Les came out of his room looking for help, as he was having a seizure. We think it lasted less than 2 minutes. He immediately fell into a deep sleep and continues to sleep now. He was given Ativan to help with anxiety and in controlling his pulse. We are not sure what to expect, but will keep you all posted. Please pray that he is experiencing no pain and for peace for our family. Thank you.

Thursday, August 13, 2009

Somewhat better

Tonight Les's fever is gone and he seems better than this morning. He was able to swallow some watermelon and small bites of popscicle. I guess there is a fear he will aspirate into his lung if the swallowing isn't working correctly. We did sign on to hospice so that will be comforting to know he'll have additional people looking out for him. He remains very quiet, but is much more alert than earlier today. Thank you for your warm thoughts and prayers. Please know we appreciate them.

Not so good

Mom called this morning around 9am to say the nurses thought Les had deteriorated during the night. He has a fever and is unable to swallow or suck through a straw. We have called in Hospice, and they will be coming on board today. He is sleeping now, holding Mom's hand. We have a call into the doctor and will post more later. Thanks.

Wednesday, August 12, 2009

Cancer or flu?

On Monday morning, Les's stomach was very upset and he spent most of the morning vomiting. Monday night and all day Tuesday he was able to keep things down, but this afternoon, it started up again. I guess his lip was somewhat swollen today and he actually took a trip across the parking lot to the dentist to make sure things looked okay in his mouth. Things looked alright, but they put him on Amoxicillin just in case something was starting.

Mom will be calling Dr. T tomorrow to ask about several things... the nausea/vomiting, the shaky hands, the fact that he cringes in pain when the nurses take his shirt off, the blank stares and how quiet he has become again. His vitals continue to be good, but he did take a pain pill today.

Please continue to send up prayers for Les and Mom. We would appreciate it. Thanks.

Sunday, August 9, 2009

Not sure what's going on with Les...

The last several days have been very quiet for Les. He is back to staring off into space for long periods, not saying much, if anything, and at times starting sentences that he cannot finish. His hands continue to shake quite a bit, which makes eating and drinking difficult. He often has his hands folded on his chest or holds on to the rails of the bed so they don't shake as much. He does eat pretty well, but getting him to drink continues to be a struggle. He really doesn't seem to be interested in anything (TV, newspapers, stories about things going on in town, etc.) His vitals are good, he isn't really in any pain, and he doesn't have a fever. We struggle with how to help him communicate or get him interested in anything. Please continue your prayers for Les and Mom. We appreciate you keeping them in your thoughts.

Wednesday, August 5, 2009

Nothing too new...

Les is hanging in there...eating more than we've seen in a long time and much more alert and conversational than before. His voice is stronger and he smiles at stories/memories with visitors.

This morning he told mom he felt "puffy". We're not quite sure what he meant by that, and he couldn't really find the words to explain it. Finding the right words continues to be difficult at times. He and Mom played War, the card game, the other night and he did pretty well with that.

Physical therapy started again this week so that should help his muscles and coordination improve. Thank you for your positive thoughts and prayers. We appreciate you checking in on Les's progress.

Friday, July 31, 2009

Some news...

Les, Mom, Aunt Judy and I met with Dr. T this afternoon. Les was really uncomfortable in his wheelchair, but did pretty well conversing with him. We are again cutting back on some of the meds, with the hope that his hands become less shaky and words are more easily retrieved. Dr. T also advised giving the chemo a break, allowing Les to gain some of his strength back. We will re-evaluate in 4 weeks to see if chemo is a good plan at that point. Mom cancelled the appointment with Dr. Sexina today, since we already had our questions answered and Les was having trouble getting into a good position in the chair.

For the last several evenings, Les has been more conversational. He ate/drank very well tonight...we're not sure why the sudden change, but we're very happy about it. Sounds like gowning up will continue for the next several weeks. Visitors are always welcome, but it may be a good idea to call mom first at 402-480-2981. Thanks for keeping Les in your thoughts and prayers. We appreciate it!

Wednesday, July 29, 2009

Everybody loves Wipeout!

Tonight when the kids and I visited Les, he was eating vanilla ice cream...Mom was gone and he was actually eating without being told. Imagine that! He also laughed several times as we watched Wipeout, the show where adults run an obstacle course, fall into the mud and generally make fools of themselves for big money...a good night.

Tomorrow Les will be going to the wound clinic to have a bed sore checked out. Friday will bring Drs. Tarantolo and Sexina. Thanks for checking in!

Tuesday, July 28, 2009

Not much to say...

Les has become more quiet in the last couple days again. He began having some trouble swallowing on Sunday and more pain in the neck as well. They did put him back on the antibiotic he was on in the hospital; I guess to make sure the infection is completely gone and to make sure it doesn't go to the other parotid gland on the painful side. We are scheduled to see Dr. Tarantolo on Friday.

The days are really long for Mom, completely closed in those 4 walls, all gowned up. Cousin Jodi's laptop has been such a blessing. Mom's days pass more quickly with Text Twist, crossword puzzles and spider solitaire.

Thanks for checking in...we'll share what the doctors advise later in the week.

Saturday, July 25, 2009

Not too much new news...


Les continues to be awake quite a lot, but doesn't really care to converse. He did say he was bored yesterday, but we're not quite sure how to cure the boredom. He really has no interest in reading, watching movies, playing cards, or using the laptop. Realistically, we're not sure what he is able to do. His hands have been quite shaky this week, so the laptop and cards might be difficult. He is smiling more and that always warms our hearts.

Dr. Tarantolo will see us next Friday afternoon (unless some pesky infection causes us to see him before that). Les isn't drinking much so we continue to worry about dehydration and another bladder infection. The swelling and redness have virtually disappeared, although it is still painful to the touch. Gowning up is still required. Thanks for all the positive thoughts coming our way!

Wednesday, July 22, 2009

Taking precautions...

As of this morning, any visitors to Les's room will be asked to "gown-up" to avoid the spread of the staph infection. The gowns, masks and gloves are outside his door.

Getting him off a lot of those meds has made him much more awake, but not much more talkative. His appearance is a little different too, as he is sporting a very stubbly stache and beard. (I said he looks a little like Sean Connery.) His neck and cheek are still pretty painful and shaving just isn't high on his list.

Eating is a bit better, but getting him to drink is really hard. An appointment with Dr. Tarantolo will happen sometime late next week to monitor his condition and see whether more chemo is apart of the plan.

Thanks for keeping up on Les's progress!

Monday, July 20, 2009

Returning home tomorrow

The meds have had their chance to get out of Les's system and he seems better. His eyes are clearer and his voice level and speech have increased, as well. Dr. T is pleased with this progress and he will be coming back to the care center tomorrow. We're still not sure whether chemo is going to happen or not. We appreciate you checking on Les's progress. Thanks!

Saturday, July 18, 2009

Not what we thought we were going to get...

When we met with Dr. Tarantolo this morning, he was not ready to recommend stopping treatment altogether. There were several reasons for this. First of all, the MRI of the brain and upper spine area showed there hasn't been any new growth in these areas, so the symptoms Les has been having (unresponsiveness, blank stares, shaky/curled up hands, mumbled/incoherent speech) are not related to the brain cancer.

A few days ago he stopped the Marinol (an appetite stimulant that can make you feel like you are high). After looking at Les's dilantin levels (a drug he's been on to make sure he doesn't have seizures) Dr. T realized they were way too high. This too can make you feel/act like you are drunk. A change to a different med will be made today. The anit-depressant dosage will also be dropped a little. The combination of all these drug related side effects could explain many of Les's recent behaviors. Dr. Tarantolo is hoping by Tuesday everything will be out of his system and Les should be more like himself.

We will look at the issue of continuing treatment next week when we have a clearer picture of what Les is like after being more drug free.

A small wrinkle was added this morning. Looks like after culturing the infection in the parotid gland, it is MRSA...a staph infection. So, a change in the antibiotic was ordered and in the next 36 - 48 hours the swelling, redness and pain should be much better.

Our roller coaster ride continues...thanks for checking.

Friday, July 17, 2009

Late news...

What a frustrating day! Mom was at the hospital at 7:15am to make sure she didn't miss Dr. T doing rounds to get the MRI results. When I got there at 10am, I saw him in the parking lot and thought I'd missed him. Seems as though he didn''t round to our room and wouldn't be back until after office hours...after 5pm. After 5pm really turned out to be 8:30pm. Mom had just arrived at Aunt Judy's when he called.

He said the scan of the brain looks very similar to the one Les had done 4 weeks ago, which is good news. Unfortunately clinically, there is a major difference in him. We are hearing from several doctors that it may be time to stop treatment and move on to more palliative care. (Definition from wikipedia = reducing the severity of disease symptoms, rather than striving to halt, delay, or reverse progression of the disease itself or provide a cure. The goal is to prevent and relieve suffering and to improve quality of life for people facing serious, complex illness.) It all comes down to the quality of life part, I guess.

We'll be meeting with Dr. T again tomorrow morning to discuss this in person. Please pray for us during this devastating decision making process. As always, we appreciate you keeping us in your thoughts.

Thursday, July 16, 2009

Part 2 - no news yet

Well, unfortunately, part 2 doesn't have much new news. His hemoglobin numbers continue to be low; the 5pm reading was at 9.9. I guess normal ranges are usually between 12- 15. We did not hear anything about the cultured infections or the MRI results. So, we continue to play the waiting game.

Les did wake up a little late afternoon and ate some grapes, a chocolate chip cookie and some Ensure. He seems clearer than the last few days, so we are happy about that. The cheek has not gone down in size or lost its redness like we had hoped. Thanks for checking...

Thursday - part 1

No results from the MRI yet...they took him down around 10:30am, and said we should get some results later today. He has been talking to doctors, nurses, and my pretty cousins a little more lately, so we are hoping the dropping of some of the meds will make him more like himself.

When mom arrived at the hospital this morning, the nurses shared that his hemoglobin had dropped from 12 to 10 overnight and they found some blood in his stool. A colonoscopy could be done tomorrow to see if the cancer has spread there, but we are thinking it doesn't really matter if it is there (treatment would stay the same) and it would be so hard on his body. A final decision will be made later today, but again, we're not pushing for it.

More info will come when we get the MRI results. Thanks for checking in.

Wednesday, July 15, 2009

Update on Les

A couple of ENT doctors came to visit Les today regarding the infection in his parotid gland. They swabbed the inside of his cheek and found it full of pus. They are culturing it and I guess there is a possibility it may be a staph infection, but nothing confirmed yet.

Dr. Tarantolo also visited and was completely surprised at how unresponsive (not answering questions/blank stares) Les was. He immediately said we needed to drop the Marinol (the appetite stimulant that can make things unclear) and may adjust the anti-depressant later. There is an MRI scheduled for tomorrow to see if his unresponsiveness is due to meds or more spots on the brain.

We are all very tired and dealing with so many emotions. We appreciate you checking the blog and I'll make sure and report the MRI findings as we know it. Thanks for your continued support.

Admitted to Lakeside

Around 3:30am this morning, the nurses from the Care Center called to say they thought Les was having trouble swallowing and were worried about him getting enough oxygen. The ER took more blood for cultures and are giving him IV fluids and antibiotics. His neck continues to have a lot of pain and he is very quiet. We're not sure how long he'll stay at this point. Thank you for your continued prayers and positive thoughts.

Tuesday, July 14, 2009

A trip to the ER

Mom called this morning about 9:20 and said the left side of Les's neck was swollen and painful. A call to the Dr. confirmed what we thought...a trip to the ER. We got to Lakeside about 11am and they took some blood and did a CT scan of the neck area to see if it was in the lymph nodes, an abscess or something else. Les didn't or was unable to answer questions, so it was hard to know exactly what he was feeling.

Around 2:30, we received word that he had an infection in his parotid gland (a salivary gland in your cheek), which explains the higher white cell count yesterday. They are treating him with antibiotics and he was back at the Center around 5pm. We hope the swelling and the pain are gone in the next 48 hours. If not, he may need to go back to see if there is more than the infection causing the problem. We'll also need to watch his swallowing to make sure he doesn't aspirate something into the lungs. Chemo has been pushed back another week to make sure the infection is completely gone.

Communicating with him continues to be challenging. Mom has even resulted to the blink once for yes or twice for no...and we think that is working sometimes. ? Who knows. Please pray he remains fever free, the pain and swelling go down, and he is able/willing to share how he's feeling. Thanks.

Monday, July 13, 2009

It's been a while...

Not a lot to report in the last few days, but this week brings lots of doctor appointments.

Today, Les met with Dr. Sexena, his primary physician. She wanted to see him to make sure the bladder infection was cleared up. His blood tests indicated his white cell count is up (not good in this case, as it usually means infection somewhere). The urine looked clean, so we're not sure why the count is up.

Les continues to be very weak. This time last month, he was lifting a 4 lb. weight and doing 20 reps. Today he is only able to do a 1lb. weight 5 times. He seems to be awake more of the time, but is talking less. He often won't respond to questions which makes for long, drawn-out days for Mom. The pain in his neck continues on both sides, but he almost always refuses any pain meds for it.

Dr. Tarantolo sees us on Wednesday before the 4th round of chemo starts. It will run through Friday, and based on what happened last time, Les will have scans done 7-10 days after that.

Thanks for checking...I'll post more in a few days to let you know how the chemo is going and to share what Dr. T has to say.

Wednesday, July 8, 2009

Says he's better...

When I visited Les this afternoon, he said he was much better (as opposed to well or fine). When we returned after dinner, he ate a bowl full of grapes and drank lots of juice. He actually put on his glasses and watched all of Wheel of Fortune with us (that's right, 30 full minutes with his eyes open!). This hasn't happened for a long time!

Mom said physical therapy was difficult after so many days laying in the bed. The pain in his neck is still very painful...he didn't even want lotion on his head today because it hurt. We're not sure what to do about that. Hopefully tomorrow will be better as well. Thanks for checking!

Monday, July 6, 2009

Lots of meds, not much nutrition

Since Les has been complaining of pain in his neck, they've added a pain med to his daily cocktail. We're thinking that, along with his numerous other meds, may be adding to his sleepiness. He seems fuzzy and at times forgetful, so we are never sure what is reaction to meds vs. cancer. We are again worried about dehydration, since he isn't drinking or eating much. He'll see Dr. Sexena on Monday and start up round 4 of chemo next Wednesday. Continued prayers are always appreciated. Thanks!

Saturday, July 4, 2009

Happy 4th!


Tradition calls for us to spend the 4th of July with our good friends, the Whiteheads. There is always a photo which is mounted in Doug's garage. It was taken again today, but we also took a field trip to Les's room for another photo. He was surprised to see all the company and I think very touched. We appreciate everyone's willingness to make him feel apart of the day!

Friday, July 3, 2009

Pre-weekend update

Les continues to sleep a lot, but not nearly as much as he was doing a week ago. He seems clearer in thought and when he speaks so the infection must be getting better. He is experiencing some pain in his neck area, so we're not sure what that is. Eating and drinking continue to be low on his list.

We hope you all have a relaxing and enjoyable holiday weekend. Thanks again for checking in on our family.

Wednesday, July 1, 2009

Back in the Care Center tonight

Around 5pm, Les left Lakeside and headed back home to the Care Center. The ride was bumpy, but he managed. He was forcefully told by Dr. Sexena that he needs to eat and drink. We'll see. He slept almost all day again.

Dr. T thought it best to push the 4th round of chemo off a week, so it will start up July 15 and end on the 17th. As always, thank you for taking the time to check the blog and Les's status. We appreciate it.

Tuesday, June 30, 2009

Another down day

Are you dizzy from this roller coaster ride of ups and downs...we sure are. The doctors had said he would have much more energy today, but that was not the case. He spent almost the whole day sleeping and refused to eat more than a bite or two at each meal. Because they have not determined the type of bacteria causing the infection, Dr. T said he would stay in the hospital a few more days.

Thank you for checking the blog and keeping Les and Mom in your thoughts and prayers.

Monday, June 29, 2009

A much improved Les

A few days of IV fluids and antibiotics have made Les feel and look much better! His hemoglobin was also low and is receiving two units of blood. This will give him more energy and by tomorrow he should feel more like himself. He did eat a half a pancake and some hashbrowns for breakfast, so we are encouraged. He will stay here at Lakeside overnight and could be released tomorrow, but we haven't heard that for sure. Round 4 of chemo is still scheduled for July 8 - 10. Thanks for keeping Les in your thoughts and prayers.

Sunday, June 28, 2009

Les admitted to Lakeside

For the last several days, Les has been sleeping almost 23 out of 24 hours each day. Eating and drinking again became an issue and we thought he was getting dehydrated. Today, he was brought to the ER and diagnosed with another bladder infection. The fluids did seem to perk him up and he has been awake more today than in the last 3 days. Because his white blood cell count is a little too low, they are admitting him at least overnight. Please continue to keep him in your thoughts and prayers.

Thursday, June 25, 2009

Hope you can view this...

Les doesn't seem to be doing well. For the last several days, he has mostly slept and remained very quiet even if he is awake. He speaks very little and almost seems emotionless. He isn't complaining about pain and said food is starting to taste better. We aren't sure if this round of chemo is harder on him, or if we just forget how badly he feels each time.

For my class I'm taking this week, we learned about this fun website, Animoto. I thought I'd try to embed it and we can all remember some better times. It is 2 1/2 minutes long. I've found if I let the whole thing load first (press the play arrow on the bottom and then quickly press it again to pause it. A darker bar should slowly move all the way across the video) it should play without skipping when you press play again. Cross your fingers!

Monday, June 22, 2009

More of the same...

Lots of sleeping, not much eating or conversation. He continues to be very weak. Continued prayers for strength and peace would be truly appreciated.

Saturday, June 20, 2009

One tired guy...

Round three of chemo finished on Friday with another shot to keep his white cell count up during the next week or so. He is having trouble eating and drinking again. This seems to be the biggest side effect of the chemo for him. He wasn't feeling too well today and as always, is very tired. We hope you all have a wonderful and relaxing Father's Day.

Thanks for all your continued support and prayers.

Wednesday, June 17, 2009

Round Three - day one of chemo

Before chemo started today, we met with Dr. T. He expressed his pleasure with the good news of the scans and went over them with us a little bit. The amount of shrinking of the tumor in the lung is really something to celebrate. He said the newer tumor on the T10 is actually in the bone, so Les will be receiving a dose of medicine through the IV every three weeks to prevent the cancer from spreading to other bones. His extreme weakness could be attributed to his very low blood pressure. They were going to give him something for that, too.

Dr. T shared that our tentative plan is to do six rounds of chemo (round three began today). After round four, we will scan again (approximately July 28). If there is no progress at that time (sometimes chemo plateaus) he wouldn't recommend further treatments. He is disappointed the legs aren't moving more and indicated after this long, he probably won't regain full use of them. The memory issues (word retrieval/short term memory/etc) could be attributed to a variety of factors (chemo, meds, depression, radiation) and is one of the more frustrating parts of the illness for Les. The bladder infection may also still be hanging around...they were going to culutre it and get back to us.

We are so thankful he is pain free. Thank you for all your prayers during this time in our lives. We would appreciate your continued prayers that he remians pain free and that his words and memories appear when he wants/needs them. Thanks for checking in and sending the birthday wishes his way!

Tuesday, June 16, 2009

Update

While upbeat after the news of the scans, Les has become very weak and tired again. He doesn't want to sit up in the chair much and when he does, sometimes keeping himself upright can be difficult. Chemo will go Wed - Friday with all treatments at 10am in Omaha. We're planning to celebrate his birthday tonight incase he is feeling poorly after chemo tomorrow.

The Rotarians met at the Care Center again today. This is one thing he really looks forward to. The early start isn't mom's favorite, but they are both so pleased everyone is willing to allow him to be apart of it every once in a while.

His legs are moving a little better each day. The right leg is much improved and the left foot continues to wiggle as well. Thanks again for all the positive comments on the blog, phone calls, cards, and emails. We appreciate you keeping Les in your thoughts and prayers.

Thursday, June 11, 2009

There is good news!

We just heard from Dr. Tarantolo, and we have read the reports from the radiologist (with some help from the Internet for the big words). The news sounds really pretty good and we are cautiously optimistic!:)

Here is what we think we know. The mass in the lung on the left is down from 3cm to 1cm. The one on the T8 has significantly decreased in size. The tumors in the brain have also decreased in size and in number! All of your prayers have helped this to occur!

There does seem to be a tumor on the T10 that may have been there for a while and it has increased slightly from a previous scan. There may also be a new mass in the right lung according to the report, but Dr. T. didn't mention it. He said the progress that has occured is exactly what he thought would happen.

So, chemo will begin again on Wednesday, June 17 and go for 3 days. He will have 2 of these treatments and then we'll scan again.

We are encouraged and know it is because of all the prayers offered on Les's behalf. Please continue to keep him and Mom in your prayers.

Wednesday, June 10, 2009

Tests done...the waiting game begins

Les made it through all the scans today but was very tired. He finally finished around 6:45. Aunt Judy got him a peanut butter shake (full of protien) from DQ for supper and he after a few bites his comment was,"It kind of grows on you."

He was in good spirits even on the way home in the van. We were told we probably won't get the results until tomorrow afternoon. We're not sure how the results are going to come...none of us are excited about getting the news over the phone. Les did ask Dr. T once if he made house calls. His response, "How close is it to Quarry Oaks?" :) Wouldn't that be something!

More as we know it. Thanks for your continued thoughts and prayers!

Tuesday, June 9, 2009

Another infection

Dr. Sexena confirmed that Les has another urinary tract infection. This one was without symptoms so it is good he was seen today. He will need to be well hydrated for the scans tomorrow. The appointment is at 2:45 and could last until 7pm. Natalie is coming late tonight and good friends Ed and Beth should arrive tomorrow, too. Results should come tomorrow or Thursday. Les told mom today he is just going to take things one day at a time. Good advice for all of us. Thanks for you continued prayers. We'll share results as we know them.

Sunday, June 7, 2009

Sleepy Saturday/Better Sunday

Les slept almost all of Saturday. He has remained fever free during this low immunity time, so we are keeping our fingers crossed he can avoid an infection. Sunday was better. He sat in the chair for a while and saw quite a few visitors during the afternoon/evening.

Monday should be quiet, which will help to prepare him for some doctor visits later this week. Tuesday he sees his primary physician, Dr. Sexina, and Wednesday, the long couple of scans are scheduled. I have class all week, so I think Natalie will be coming mid week to wait with Mom while he has his tests. Please continue your prayers during this stressful time. We appreciate all of them!

Friday, June 5, 2009

Enjoying a beautiful morning



After a not so good day yesterday, Les was a little better this morning. In between therapy sessions, mom took him outside. What a great morning to be out!

He says he is not nauseous or in pain this morning, but continues to tire easily. A pretty quiet man in general, has turned even more so. It seems this round of chemo was a little harder on him than the first one. Please pray for strength and healing for both Les and Mom.

Thursday, June 4, 2009

He's had better days...

Yesterday, when I asked Les how he was feeling, he said he's had better days. His voice is very weak and he continues to sleep through much of the day and night. He did take some pain meds for some backbone pain late last night.

The last couple nights he's had a chicken strip from Dairy Cone and that seems to taste okay. Vanilla ice cream and a chocolate elcaire are some other foods that seem to work for him. No surprise on the eclaire, right?

His regular weekly blood draw yesterday indicated his white blood cell count was within normal range, but they do expect it to drop in the upcoming days. June 10th's appointments (CAT and MRI) will start at 2:45 and last until about 7pm. Results should either come that day or the day after.

Thanks for keeping Les and our family in your thoughts and prayers!

Tuesday, June 2, 2009

Hanging in there...

After a pretty quiet weekend, Les slept most of yesterday. He did sleep pretty well during the night, too, which is great. Yesterday's PT was difficult with the extreme fatigue he was feeling, but he's on his way back for more this morning. Eating and drinking continue to be low on his list, as well. In addition to his confusion with time, there are some memory issues that pop up pretty frequently. We're not sure if it is all the meds or the cancer. Continued prayers are always appreciated. Thanks!

Saturday, May 30, 2009

Chemo Round Two = Done!

Friday, Les finished his second round of chemo. They gave him a shot to generate more white blood cells that will last for the next 14 days. He may have some bone pain because of it, but he hasn't complained yet. His voice is very weak; an effect of the steroids. His throat pain is back, so we are wondering if that is what happens with his body after chemo. Because of the pain, eating has become almost non-existent again.

He will see Dr. Sexina, his primary physician on Tuesday, June 9th. They changed the dates of the CAT/MRI to June 10 @ 2:45pm. The third round of chemo is now tentatively scheduled for June 17 - 19th. He seems very tired and weaker than we've seen him recently.

He still continues to enjoy short visits, but as we hit the 7 - 10 day window after chemo, we may ask for a temporary break. We'll keep you posted on how this round of chemo interacts with his body. Thanks for checking in and we hope you are having a nice weekend!

Thursday, May 28, 2009

Chemo Day Two - done

Chemo went well again today. Les slept most of the day when he returned. They were right...he didn't sleep well last night. :(

The visit with Dr. T went well. He indicated that Les's next scan will be on June 17th...his birthday. The CAT scan will look at his chest, abdomen and pelvis. The MRI (which is not technically scheduled yet, but Les wants it on the same day) will look at his brain and spine. If the chemo is working and things are shrinking, round 3 of chemo would start on June 18th and the cycle of 3 days of chemo/18 off would continue. He will get the shot that helps generate more white blood cells on Friday after the chemo is done.

Thank you for all your positive thoughts and prayers.

Wednesday, May 27, 2009

Chemo Day One - done

Les had a good day with the transportation and the chemo. He rode in a different vehicle so it was more comfortable than the van he rode in earlier. They'll use it again tomorrow morning for his day 2 of chemo.

Today, they started him off with some anti-nausea meds and then had about an hour worth of chemo. They said the chemo may keep him up tonight which may make for a very long night. His sense of time is completely off. I guess two months in a bed will do that to you. He says his pain in his stomach is gone (I don't think he remembers having it...?) and we are happy he is pain free.

During the chemo appt. tomorrow, they will meet with Dr. T for a check up. I'll try and post updates from that visit tomorrow. Prayers for a good night's sleep would be appreciated. Thanks!

Monday, May 25, 2009

Fever free for now

Sounds like the fever Les had yesterday broke during the night and he said he was feeling pretty well today. He spent some time outside this morning and worked with the physical therapist as well. We're still planning on chemo Wed, Thurs and Friday this week. We hope you all had a wonderful weekend. Thanks for checking on him!

Sunday, May 24, 2009

Another Sunday fever...

Holidays and Sundays must bring on low grade fevers for Les. During a routine vitals check they realized Les had a mild temperature. They alerted his primary physician, Dr. Sexina, and she thought it might be an infection in the bladder again. The quick results came back a little inconclusive, but the phrase Bacteria: MANY meant that the sample will be cultured over the next day or two to get clearer results.

They will watch him overnight and if the fever gets to be 101˚F we'll need to get him to the ER tonight. If it is still low grade tomorrow morning a trip to the ER may be needed, we'll have to wait and see. His appetite was a little better this morning, but he was back to his normal two to three bites by dinner.

Please continue to keep him in your thoughts and prayers. Thanks!

Friday, May 22, 2009

Dr. visit went well

Looks like Les is up for another round of chemo starting next Wednesday and continuing on Thursday and Friday. He will get the meds to boost his white blood cells on that Friday so his levels won't go so dangerously low again. I guess they took some blood to analyze but mom wasn't given detailed info of the quick results...just that 3 of the categories were low. He was also given a different appetite stimulant that should help with the eating and make him feel better.


He is not excited for the trips back and forth in the van next week. He said his head is pretty close to the roof of the van and after today's round trip, he was exhausted. His attitude continues to be pretty positive and we are so thankful he isn't in much pain. Thanks for checking and we wish you all a relaxing Memorial Day weekend!

Thursday, May 21, 2009

Seeing Dr. T tomorrow

After looking at the discharge papers more closely, Mom realized seeing Dr. T on the 28th (formerly the 29th) was just not soon enough. A call to our nurse navigator, Chelsea, helped us score at date with the Dr. on Friday morning at 11:30. It will be good to share the questions we have regarding Les's inability to eat more than a bite or two and the pain in his stomach. We'll keep you posted on what we find out.

Les showed off today in PT by standing (with the assistance of some parallel bars) for about three minutes - two different times. Mom was very proud and I think he was too. He did verbalize what a long road ahead he'll have to get back the muscles and movement.

There were lots of visitors this week including a fraternity brother from California, a cousin from Delaware, and more than a dozen Rotarians for an early morning meeting. Thanks to all the friends and family that have taken time to show their support for Les. We appreciate you!

Monday, May 18, 2009

Catching up...

Les is back in the routine at the Care Center. They get him up early, he'll have a bite or two (literally) of breakfast and a while later he is off to therapy. He knows he needs to exercise those leg muscles, but doesn't always have the drive to do it independently (sounds a lot like me!). The left foot will wiggle, but the right one continues to move better. Because of the placement of the T8 tumor (around the belly button area) his stomach muscles have been affected too, and therefore it is hard for him to pull himself to a sitting position. He has a pretty good attitude and continues to try for other people.

The eating is not going as well as we'd like. He has lost about 40 pounds since this started eight weeks ago. It hurts to swallow and therefore eating is like torture. He thinks the Maalox helps and tries to get a few bites each meal and a few snacks in between meals. His throat and stomach are two sources of pain, so please pray for relief of those areas.

He is scheduled to see his primary physician, Dr. Sexina, on Wednesday the 27th, to make sure he is fully recovered from the bladder infection. He will see Dr. Tarantolo, the oncologist, on Friday the 29th. We will know more about the second round of chemo after those office visits.

He loves to have "short" visits from friends and family. I guess Rotary will be held at the Care Center tomorrow morning so he can be apart of it. We are thankful so many people are willing to stop by and show they care. Thank you for taking care of him and my mom!

Thursday, May 14, 2009

Back and by himself...

After some trouble with the wheelchair again, Les made it back to the Care Center around 4pm. His white cell count is well over 8000, so he is back in the normal range. He is back in his old room and Lloyd, his roommate, was kind enough to move to another room. We are thankful the ladies at the Center are trying to make him as comfortable as possible. He will go and see Dr. T. next Wednesday. Chemo won't happen unless all the blood levels are okay and he is fever free. The eating is going better; we hope that continues. Thanks again for your prayers. We appreciate them.

Wednesday, May 13, 2009

Return to the Care Center tomorrow?

The meds helped Les's count to increase today and they are expecting big numbers by tomorrow. Masks and gowns were not required today since he is getting better. They cleared him of pneumonia (not sure if the xray was incorrect or if it just cleared up quickly with all the high dose antibiotics). They did find ecoli in the infection in the bladder, but they are confident it is getting better. Depending on his numbers tomorrow, he may be returning to the Ashland Care Center. If/when his numbers are high enough to resume chemo in the future (next week), they will give him the meds to boost white blood cells before chemo starts as a preventative. The heart burn/acid reflux is continuing to bother him and his Nexium has been increased. He is also taking Maalox before he eats to cover his stomach.

Thanks for your continued positive thoughts and prayers.

Tuesday, May 12, 2009

About the same today

Les's white blood cell count was at 0.7 today. His fever is gone and they are giving him something to work in the bone marrow to create new white blood cells. He did try and eat more today and sat up in a chair for about an hour and a half. He has been experiencing some major heart burn/acid reflux which makes eating even more unappealing than it was before since it hurts when it goes down. Dr. T came at 7:30 am, so mom didn't get a chance to talk to him and she and the nurse couldn't read the notes he'd left. Even with all the practice mom has had reading messy handwriting, it was mostly undecipherable. Hopefully she'll catch him tomorrow.

Monday, May 11, 2009

Count is so low...

When I left the hospital at 6pm, they said Les's white blood cell count was at 0.5. It was a struggle for him to eat or drink anything, but the nurses/dietian have flat out said he has to get nutrients not only for energy, but for skin repair/durability, less nausea, etc. He finally drank about half of an Ensure (vanilla...he says chocolate has been giving him stomach pains) and called it good. We're not sure what the number has to be to get him released from the hospital. Hopefully Mom will touch base with Dr. T tomorrow.

Monday Update

I talked to mom around 1:30 and she said they have confirmed a bladder infection. His white blood cell count is now 18. Everything needs to be wiped down before he touches it and they are washing their hands all the time. His attitude is good but he is very tired. More later...

Back at Lakeside Hospital

Last night around 8pm, it was decided that Les should go to Lakeside ER for a fever he'd developed during the day. Once there, they did a blood test and his white blood cell count is extremely low...500. Normal is 4000 - 12,000. So, this means he has been highly susceptible to catching something, and unfortunately, he did. He was diagnosed with pneumonia in his left lung. This is also the lung where the large tumor resides. They are also culturing a urine sample as that looked like it had some bacteria as well. He is in room 4102, but we are not encouraging visitors at this time. Mom (and anyone visiting) will need to wear a sterile gown and mask while in his room. Please pray that the antibiotics work quickly and he is able to bounce back from this set back.

Friday, May 8, 2009

Single no more...

Overnight, Les got a new roommate...Lloyd Edwards joined him in room 213. It's a little more crowded, but Les doesn't seem to mind. He is glad to have the weekend off from therapy, but did say it helps pass the time. He has had lots of visitors and that helps too. He really has no appetite and has had an upset stomach/nausea for the last couple days.

The daily posts will most likely trim down to two or three times a week until we have more news to share. We so appreciate your willingness to keep Les and our family in your thoughts and prayers. We also want to thank the many people who have helped Mom by mowing the lawn, cleaning the gutters, bringing food, and encouraging her to take some time away from the hospital/care center. The last 6 weeks have been overwhelming...for the good and the not so good. Thanks again.

Wednesday, May 6, 2009

Getting the routine down

Well, sounds like they got Les up early --6am early, and he was at the breakfast table from 6:15 to about 8:15 visiting with a table full of ladies. I think for the most part it was okay...he said they are a little bitter. Probably not a shock to most of us. Therapy went from 10:45 to 11:40 and he ate a good lunch. He had some visitors and then a nap. It was a "sweet" day with several cheesecake bites and a couple scotcheroos. Good thing mom isn't on him about his heart...he's enjoying every sweet thing! I guess there will be a blood draw on Friday that will be sent to Dr. T and on Wednesday of next week, Les will take a road trip to see him. Take care and enjoy the beautiful weather!

As requested, their address: 2102 Pinto Road, Ashland NE 68003 or email at lb13059@windstream.net

Tuesday, May 5, 2009

Tuesday's update

Mom said Les had his first therapy session at the Care Center and it was good...mostly an evaluation on their part to see where he is at. We think therapy will be five days a week. Sounds like he had a long afternoon nap and had quite a few local visitors that kept the day moving. Mom seems to think he is more relaxed than he was at the hospital, so we are happy about that. He seems to be eating well, so the food must not be too bad! Thanks for reading!

Monday, May 4, 2009

Our hometown boy is back...

The Care Center van came to pick up Les today. Unfortunately, they didn't have the wheelchair to take him home in. Fortunately, the hospital was willing to let us borrow one and bring it back at a later date. Unfortunately, it was too wide for the lift. Fortunately, Mom had a collapsable one in the car! Whew! He made it with just a little more effort than we originally planned...I think it bothered Mom more than it bothered him!

He is in room 213 at the Care Center, which is just inside the west doors by the Chapel. He has the room to himself until they get another resident. Nancy Maack brought him a delicious chocolate malt from Cherio's that really hit the spot. (Thanks to her and to Cherio's for making him something special!) Dinner was good (they fed all of us) and he was getting ready for a visit from Mom's sister, Barb, when I left this evening.

We're not exactly sure what to expect as far as a routine, but I'm sure it will become all too familiar. Thanks for checking on him and keeping us all in your prayers.

Sunday, May 3, 2009

Last full day at Bergan




As mentioned earlier, Natalie and her family came to town to see Les and celebrate Jenna's birthday. Here are some photos of our day. Jenna won a hat at Family Fun Center and thought it would look good on grandpa, too. What do you think? Huskers or fuzzy purple one?

I guess a van from the care center will transport Les tomorrow. He will be in his wheelchair for the ride. He was a little nauseous today, but once the nurse encouraged him to take something for it, he felt much better.

We were seeing attitude in full force today regarding the exercising. Sunday is a day of rest after all and Sunday afternoon naps are one of Les's favorites. Thanks for reading and we hope you have a good week!

Round one of chemo is over!

Yesterday, Les had his last dose of the chemo. After a somewhat grumpy morning, some visitors and some exercise made him quite pleasant to be around. Topics of eating and exercise are the hot buttons to bring on the rolling of the eyes. Even the nurses have commented on it. Les says they are his "bone of contention". He just doesn't think he needs to eat when he isn't hungry and there will be plenty of time to exercise...why rush it?

Natalie and her family are coming for the day today to see Les and celebrate Nat's daughter Jenna's birthday. It should be a good time...the kids always perk him up. Moving to Ashland tomorrow. Thank you again for all the prayers and well wishes. We appreciate them all and you too.

Friday, May 1, 2009

More chemo, more movement, more attitude

Les had his second chemo treatment today and seems to be tolerating it well. He doesn't eat much, but isn't complaining of nausea either.

Late this morning, he wheeled himself all the way down the hall and back (550 ft)! Once back in his room, he stayed sitting up for a while as well. He buzzed the nurses that he was ready to move back to the bed and when they didn't respond quickly enough, he told mom, "I'm getting no sympathy at all." She asked if he thought he needed it. His response, "I guess not." :)
He did sit up again later in the afternoon for about 45 minutes, so I'm sure he is tired tonight.

One more chemo treatment tomorrow, a down day on Sunday, and then they are picking him up Monday at 10am to take him to the Ashland Care Center. We hope we are making a good decision regarding the Care Center...guess we'll let them know as time goes on. I know it will be good for mom to be closer to home. Enjoy the weekend weather!

Thursday, April 30, 2009

Day one of chemo...

We found out today that the ultrasound on the liver indicated that the cancer had not spread there. The liver function levels were higher than normal, but they couldn't really attribute that to anything from the ultrasound. Dr. T is concerned that the movement of the left foot is so inconsistent. Les has been unable to move it the last couple days again.

He wheeled himself about 50 ft. today and told mom he was done. She encouraged him to rest a while and try again. After resting few minutes, he again told her he was done. She said ok...turn yourself around and we'll go back. He looked at her and said, "Are you helpless now?" Yikes! She waited him out (just like the great teacher she is) and he turned himself around and wheeled back to the room.

Chemo started at 4:15. The first med took and hour and then they changed to a second med, also for an hour. Dr. T. thinks he should tolerate it very well. We hope so. Thanks for checking...

Wednesday, April 29, 2009

Radiation is over...

Tomorrow Les will have an ultra sound of his liver before chemo starts to get some baseline information. Chemo will be done in his room, so at least he'll be semi-comfortable. He was up and out of bed twice today for about an hour each. He even wheeled himself down the long hallway to the windows (about 275ft)! He wasn't very happy about it, so I'm guessing it wasn't his idea. He didn't eat much for dinner, but enjoyed the cherry cobbler. Mom thinks it's funny that he eats the desserts first. Sounds good to me! Please send up some prayers for an easy reaction to the chemo. Thanks!

Tuesday, April 28, 2009

Release date set...

We found out today that Les will be getting his last radiation treatment on the mid spine tomorrow. I'm not sure what changed, but chemo will start on Thurs (3hour), and continue Fri (1hour) and Sat (1hour). We don't think the Ashland Care Center will admit on the weekend, so it looks like he'll leave Bergan on Monday, May 4. Carboplatin and Etoposide are the chemo drugs of choice for Les. Side effects will be nausea during the dosage days and then fatigue, low white, red, and platelet counts for several weeks after that. They also said to avoid your favorite foods during that time or you may develop an aversion to them! Guess I'll have to eat his chocolate to save him from himself.:)

PT says he needs to be up and more active. They say for every one day he is in bed, it takes four days to recover. So, his goal is to start getting up and out of the bed 2 times a day for extended periods. He did go outside today for a while, but said it was chilly. I thought so too! (Thanks Aunt Nancy for taking such great notes...you should start a blog!) Take care!

Monday, April 27, 2009

Some answers, some questions

I talked to Mom around 1pm today and she said radiation had gone well. Les had shared with his primary physician that he was having some trouble swallowing. We jumped to the conclusion it was the tumor on the C3, but later found this may not be the case. I guess he has developed some mouth sores, which are a result of all the steroids he is on. He has been prescribed some swish and swallow medicine to take care of these sores. So, hopefully they will clear up and the swallowing issues will go with them.

Dr. Torantollo finally rounded around 7:10pm. He said that the chemo will start the day after the radiation stops. He is checking to see if Les will be released the day of his last radiation treatment (May 4) or if they will continue to keep him for 3 additional days for the chemo and then be released.

When Dr. T. asked Les about how his legs were working, he moved both feet! It was a shock to Aunt Judy and me, who hadn't seen that left foot move for weeks! Mom said she just had seen it earlier today. I guess it's being a little unpredictable, so he can't always do it on command. We were all a little more optimistic, but also wonder what else Les isn't sharing with us. He did say that his neck doesn't hurt as much as it used to, so we are also happy about that.

PT and OT will continue each day. He was up in the chair and wandering around the lobby since it was too cold to go out today. Mom is going to make him wheel himself tomorrow to work his arm muscles. We'll see if he is in the mood for that. Take care and thanks for your prayers...they must be working.:)

Sunday, April 26, 2009

A gray day...outside and in

Around us, Les's mood today was much like the weather...somewhat gray and gloomy. I guess he perked up a little for some visitors, so that is good. He watched a little golf on TV, listened to an informational CD, and slept/laid with his eyes closed much of the day. He wasn't really in the mood to eat much when I was there, so hopefully that changes a bit. We didn't get a visit from the doctors today, but mom and I brainstormed a list of questions for Dr. T for when she sees him tomorrow. Hopefully a change in the weather will make everyone happier!

Saturday, April 25, 2009

The end of another long week...

Here we are at the end of our 4th week of learning about Les's diagnosis. So much has happened in a short amount of time. My sister, Natalie and her kids, came to visit for a few days which brought lots of smiles from Les. He didn't make it outside on Friday. PT came during lunch and said they'd be back, but they never came, and Les slept/laid with his eyes closed a large portion of the day. Radiation takes less time now that they are only focusing on the mid spine. He seemed talkative while the grandkids visited and asked questions about what was going on in their lives.

I asked him if he wanted me to mention anything specific in the blog, and of course he answered no, nothing much. So I asked him if I should tell everyone to come and visit and stay well over an hour! His one word answer with a smile was, "Buzz."

We are hearing such wonderful stories and comments from old high school and college friends! He gave a big laugh when I mentioned an old friend referring to him as "Bloby". My sister and I had never heard that nickname and glad it was never used on us! Thanks for sharing your support with us.

Thursday, April 23, 2009

Time outside again...

Shortly after lunch, Les was able to spend about 25 minutes outside again today. He said he really enjoyed the warm weather. The nurses found a Chili's hat for him to wear to protect him from the sun. He says he has hundreds at home, so we'll just need to bring some up to the hospital.

He slept a lot today. He seems to think he is only getting about 3 - 4 hours of sleep during the night. Aunt Judy brought a boom box and some cds so he can listen to these interesting stories of famous people's lives and historical events. Although maybe listening to them at night isn't such a good idea... Mom said they were so interesting she missed her nap in the chair this afternoon! Dr. T has been out all week, but we'll expect a visit on Monday. Hopefully we'll get the scoop on a dismissal date and the upcoming chemo.

We love reading the comments from all our friends and family. We pray that blessings abound in your lives, as we feel blessed by you. Thanks!

Wednesday, April 22, 2009

Enjoying the weather...

He did it! He made it outside to enjoy the smell of the tulips in the air (and an idling loading van in the area)! :(
Mom, Dad, and Paul W. spent about 20 minutes outside and it sounds like it was good for him. With all the therapy he's been getting, Les is almost able to move himself from the bed to a chair without much help. When I asked what I could say about his outing today, he said, "It was nice." Yes, that's about as good as it gets.

Tomorrow will be his last radiation treatment on his head/neck. We think there will be 7 more on his mid spine after that. So, he will probably be at Bergan until the first part of May. A doctor asked him how the radiation was going, and today he said, "I think it is going to help. I'm hopeful." He also told the doc he was "pretty healthy". We laughed when he told us his frustration with the oncology social workers always wanting him to share how he is feeling emotionally. (He even imitated their voices!) It was good to see him express some of that emotion in his own way. Thanks for checking in... we appreciate you!

Tuesday, April 21, 2009

A hair cut like the good old days...


Since Les was losing much of his hair due to the radiation, I brought my clippers up to the hospital today and gave him a Marine style hair cut. I left it 1/4" long...not sure how short the Marines go. ;) He has been spending time sitting in a chair the last couple days and I think they are planning to take him outside tomorrow for some of the 75˚ day. He is very tired of the hospital food, but can't really give us any ideas for what would taste better when we offer to bring him something in. I think he eats just to make mom and the nurses happy. He does enjoy a little Baker's chocolate almost every day, though, so you know those taste buds are still working! The right leg was moving a lot today for PT and OT, so we hope those muscles are coming back and getting strong. Thanks for all the warm wishes. Enjoy the spring weather!

Monday, April 20, 2009

Feels like a Monday...

Les was back to the daily grind today...OT, PT, and radiation. He worked hard during therapy, but I don't think he really likes it. I'm starting to think he doesn't like it when mom asks him to wiggle his toes, either. Could be that the same four walls are getting a little old, and we are sensing some mild irritability. We are hoping to break up his cabin fever with a trip outside later in the week as it warms up.

Mom and Aunt Judy visited Brookstone, Gretna, and Ashland earlier today. I think they've eliminated Gretna from the list. They said Brookstone was beautiful, new, and had great rehab facilities. Ashland is in the process of some renovation and if Les went there, it sounds like he would be in one of the renovated rooms. Both facilities will transport him to chemo. We are hearing that he may stay at the hospital until his radiation treatments are all done, so we have some time to make a plan. No confirmation on a release date yet.

I think I've changed the comment section on this blog so you can post without having an account...try it, we'd love to hear from you! We've printed what we have so far and Les is very touched by all your comments. Thank you.:)

Sunday, April 19, 2009

A quiet weekend

After lots of activity on Friday, the weekend was quiet blessing. Les had a few visitors, slept a bit, and kept that right foot moving. He is good at moving the foot, but the leg is much harder. He is somewhat reluctant to do any exercises with us (a nap usually takes precedence), but when OT or PT comes, he plays along a little better. He is beginning to lose his hair. We are finding his pillow full of gray hair several times a day. Good thing he's acquired all those golf caps all these years. :)

He seems anxious to know what the next part of the plan is, but without knowing when he is being released, we are still looking at options. Ashland, Gretna, and the new place out by Elkhorn, Brooksotne, are all under consideration. We'll need to visit and see about transportation, rehab facilities, etc. This will be the last week for radiation on his head/neck. Please pray that these last visits really make an impact. Thanks so much for checking in on him!

Friday, April 17, 2009

A memorable day...






As mentioned earlier, Mom and Dad received all sorts of special surprises today. The nursing staff arranged for mom to get some flowers from Les and he wrote a very nice card, which she treasures. The nurses also gave them a nice plaque that says LOVE, an Anniversary balloon, and a card signed by everyone. Aunt Judy brought up a wonderful steak dinner with all the trimmings. She included a glass of wine for mom, a candle, real linens, and sparkling water for Les. I hope everyone has an "Aunt Judy" in their lives! Cousin Tammy and her husband Monty brought up an anniversary cake, too! All delicious!

Our good times were sobered a little with a visit from a neurologist. He was called in because of the weakness in Les's legs. They did yet another MRI (a simpler one) this afternoon and found there is quite a bit of swelling around the T8 tumor (mid-spine) which could cause the trouble with the right leg. He was able to move the foot pretty well today, and can feel it if you touch his legs/feet. We are happy about that. The neuro surgeon did not recommend surgery, which we knew from the beginning. It would most likely do more damage. Unfortunately, the neurologist doesn't think the left leg will come back. He also said that the tumor on the C3 is the same size as it was from last Saturday's scan. There are only 4 radiation treatments still available for that tumor, and we are unsettled it hasn't reduced in size. So, a memorable day, full of emotions. Thank you for all the cards for Les's health, Mom's birthday, and their anniversary. We appreciate you all.

Friday Update -

Thank you for all the well wishes for Les! The nurses and pastoral staff are taking good care of him and Mom today. They were given a Willow Tree couple for their 44th anniversary from the hospital pastor and the nurses took care of getting some flowers that are to be from Les to Mom for her birthday today. We've heard the nurses are supplying some cake, too! We so appreciate their thoughtfulness.

The MRI had good news for us! There wasn't a tumor on Les's lower spine/lumbar area, but we're not exactly sure why the severe leg weakness/inability to move has spread to the right leg. The right foot is at least moving today, but lifting the leg off the bed to a flexed position is not so good. The left one isn't playing along at all today.

He is very tired after radiation and PT this morning. He could only sit on the bed for 8 minutes today. He is very discouraged, but the plan is to really focus on the upper body and make sure it is strong. Dr. T. will be sending a neurologist by to see about the weakness in the legs.

He is done with 12 days of radiation to the neck/head (4 to go) and will have 7 more to the mid spine area. After all the radiation is done, we think we are moving back to the 3 day chemo plan through the port. This is the one where he has chemo 3 consectutive days and is off for 18. We'll check on that as it gets closer.

We have been told to look into some skilled nursing facilities for acute care/rehab as our next move once he's out of the hospital. We still haven't been told a date for that yet.

Thanks so much for your positive thoughts and prayers for our whole family. God's Blessings to all of you, too!

Thursday, April 16, 2009

Lumbar MRI tonight, I think

Not such good news as of 6pm. Mom called and said now Les's right leg is paralyzed. He's scheduled for an MRI tonight, I believe, for the lumbar area. Please pray for no more tumors on the spine. We need some Divine intervention. More as I know it. Nicole

Something to celebrate



Yesterday around 5pm, Les's left leg "jumped". Mom was very excited and wanted to go tell the nurses right away. Les, of course, didn't think telling them was necessary. He did say it hurt when it moved. There were several times throughout the evening when he was able to wiggle his toes or move the foot briefly.

Today is about the same. The toes are still moving and we are encouraged. He was really tired after radiation, so I'm sure a nap is on the agenda for the afternoon.

The picture of Mom and Dad was from Easter Sunday. The one by himself was taken on Wednesday night. Thank you so much for keeping Les in your thoughts and prayers!

Wednesday, April 15, 2009

About the same today...



I called mom around noon, and she said things are about the same today. The left leg is still not working at all, although PT has him strengthening his upper body a lot too. Yesterday he was able to sit on the edge of the bed for 11 minutes and today he was up to 13 minutes. He tried to stand and only made it about 10 seconds. They keep encouraging him to focus on the things he can do, not on the things he can't. Probably good advice for all of us.

He had his radiation treatments this morning, which make him very fatigued. The nauseousness seems to be gone and he is trying hard to eat at least 50% - 75% of his meals. He says the pain in his neck is about the same and the doctor thought that should be lessening as the treatments progress. We are on day 3 of the 5 day oral chemo.

He seems to be more like his old self, more animated and laughing. The doctors joke about how very few times they've actually heard him say more than a few words. We're not sure if it's that we, the women in his life, just talk too much or that he only says what needs to be said...a man of few words, but wise ones. Take care and thanks for checking on our progress.

Tuesday, April 14, 2009

Tuesday news

Les has had a busy morning with a few visitors, therapy and radiation. Dr. T came to visit again and shared with mom that the tumor on the spine was not on the original PET scan from 12 days ago. He had his whole team check to be sure. I guess having cancer spread to the spine is very unusual. In all his years of experience, Dr. T has only seen it happen in 6 other cases, so it doesn't sound like there is a whole lot of data available for effective treatment. According to the oncology radiologists, radiating the whole spine as a preventative is not an option. The tumor on the C3 is the more troublesome tumor, even though it is smaller than the one on the T8, as it has the ability to do the most damage overall. Please pray that that one shrinks, especially.

Thankfully, cancer on the spine doesn't hurt like bone cancer does, and we are celebrating that. We know that small cell carcinoma responds well to radiation (we have proof of that in the brain) and we continue to hope and pray it is as effective on the spine. The leg movement is still not good, but we are told after a few days of radiation (and the swelling goes down) movement should come back. Thanks for checking, and peace to all of you.

Monday, April 13, 2009

A new plan...

Well, based on the events over the weekend, we have a revised plan of treatment. Due to the tumor that is on Les's mid-spine, Dr. T advised we start oral chemotherapy. Starting today, he took a pill called Temodar. He will take this for 5 days and then be off for 23 days. This is in conjunction with the radiation on his head/neck and now spine. His left leg did not move today, which was a little bit of a downer after he was able to minimally move it yesterday. He said he did not sleep well, but that is probably due to the increase in the steroid dose. I asked about visitors and he smiled and said something like, "small groups for a small amount of time would be fine". His color is good and seems to be feeling okay aside from the tiredness. We so appreciate your continued checking of the blog and your prayers. Thank you!

Sunday, April 12, 2009

Easter is full of good news!

Happy Easter to all of you!

We met with an oncologist and the radiation oncologist this morning and they shared that the reason for Les's left leg paralysis is a tumor located on his mid spine.I guess it is actually bigger than the one on the C3 spine. We will begin radiation on this spot this morning, and he will continue the head/neck and now back radiation again tomorrow. This tumor could have actually been there all along and either didn't show up on the PET scan due to the location, or it may have grown since then. With radiation and physical therapy, he should regain use of the leg. Please pray it is so.

Finally...some news we wanted to hear. The MRI of the brain showed that the radiation is working and the tumors in the brain are shrinking! Thanks be to God! We are pleased to finally get some kind of good news.

He will most likely stay at Bergan for the next couple days. We are here because they have radiation right on site, instead of traveling from Lakeside to Midwest Cancer Center each day. He is in Room 523. Not sure if he is up for visitors at this point.

We are thankful for the doctors, nurses, family and friends that are helping us cope with each day's news. We would be lost without you.

Saturday, April 11, 2009

Update...

It is almost 6pm and Les is being sent up to the 5th floor to be admitted. They did an MRI of his head, neck and spine to the waist. A doctor will not be getting back to us with results until tomorrow at 9am. He says he is not in any pain, and if he is telling the truth, we are thankful for that. Things do not look good and we are accepting that. Hope is always there, especially on Easter morning. Thank you again for all the support. We cannot say that enough. God Bless all of you.

Prayers please...

It is now almost 4pm and we are at the Bergan ER. After a really good night yesterday evening, Les woke up this morning with extremely weak muscles. He was unable to walk with the walker or even to get himself up out of the bed. A home health nurse came for a scheduled visit and relayed Les's condition to the on call dr. They recommended that he be taken to the ER to check the tumor on the spine. He is currently having an MRI to see if that tumor has increased. We are hoping it is something as simple of being over medicated with too many nausea/sleeping pills. Please keep us in your thoughts and prayers. More later... nik

Friday, April 10, 2009

Our game plan

After Les's 7th radiation treatment today, we met with Dr. Tarantolo, the oncologist. He recommends that we stick with the original plan to radiate the head/neck for 16 treatments and then move on to chemo. The pesky part of Les's diagnosis is the tumor on his spine. There is real concern that if that one does not shrink, paralysis and the inability swallow could follow. The tumor in his lung does not seem to be causing any problems at this time (no trouble breathing, a cough, shortness of breath, etc), so we are putting it on the back burner until radation is over. Radiation will be over on the 23rd of April, although we will not be able to scan to see what progress has been made for another 6 weeks...the first week in June or so.

Chemo will be a three day on, 18 day off schedule and he will go through 2 cycles of that before a scan is done to see progress...which will probably be June as well.

Today, Les seemed more alert and less nauseous, although that is not completely gone. Dr. T gave us a new anti-nausea med to try and hopefully that will make a difference...it definitely won't make him as tired as the first one we tried. We are hoping to get all the home health people worked out and on a schedule, as that has been somewhat difficult up until this point. Some interference from Dr. T to the supervisor has surely helped, as there was a message on the machine when we got home. An appetite stimulant was also given, so we are encouraged he'll begin eating again.

Thank you so much for the cards, visits, food, magazines, phone calls, etc. We are overwhelmed with the amount of support our friends, family, and community have shown us. Please continue to pray for the cancerous tumors to shrink and not spread, and that Les may regain the life he is used to.

Thursday, April 9, 2009

Thursday...

Not much has changed today. Les went for radiation at 1:30. He continues to be very nauseous, but we later got some meds to help with that. He is sleeping a lot and very unwilling to eat or do his exercises. He doesn't mind my mom at all. We will meet with Dr. T tomorrow after radiation to discuss the chemo treatments...when, how much, etc.

Please keep praying for strength and a feeling of wellness. We are hoping this is the bottom and we can only go up from here.

Wednesday, April 8, 2009

Going Home

A change in plans...I guess the chemo won't start until next week. Les had his 5th radiation treatment this morning and around noon had the port put in. He is extremely tired, but not having much pain. He was quite nauseous (sp?) this morning. He has no appetite, but did eat some peanut butter toast and fruit around 3pm. He will need to be on a high calorie/high protein diet for the immediate future...there goes the heart healthy diet mom's had him on for years. He secretly smiled at the news.

We're off to Judy's in a while. They are still getting all his meds figured out. We are somewhat concerned with how weak he is. Radiation will happen Thursday and Friday at 2pm. Dr. Tarantolo will meet with us after Friday's appt. to discuss chemo. Please continue to pray for strength and that he tolerates the radiation/chemo as it begins next week.

Tuesday, April 7, 2009

The Latest...

Mom called at 2pm and said Les was having his 4th day of radiation. Our oncologist, Dr. Tarantolo, visited earlier and confirmed we are dealing with small cell carcinoma. Les will go for his 5th day of radiation tomorrow at 10:15 and then have a port inserted at 1pm. This port will be used to deliver the chemo. Chemo will most likely start on Wednesday. The suggested treatment will be 3 consecutive days of chemo (as well as the radiation to the head/neck) and then 21 days off of chemo. Sounds like Day 1 will be a 3 hour treatment, Day 2 an hour, and Day 3 an hour. After two series of this, a scan will be taken to see how the cancer responded. A change in the type of chemo may be needed at that time if progress is not seen.

We believe he will be dismissed from the hospital Wednesday after the placing of the port. Aunt Judy has graciously invited them to her home in Omaha for a few days. Nat and her family are coming for the Easter weekend and I'm sure watching the grandkids race for eggs filled with candy and spare change will brighten his spirits.

Continued prayers are appreciated. We are ready for some good news.

Monday, April 6, 2009

Playing the waiting game

Today (Monday) Les had his 3rd radiation treatment. They are tolerable, but make him tired. I guess he took a lap around the hospital floor, and walking is better. The oncologist believes we are dealing with small cell carcinoma, but still waiting for more results. If it is small cell carcinoma (a more rapidly spreading cancer), chemo may start as soon as Wednesday. He will be getting a port possibly tomorrow for this purpose. If chemo begins, the levels of radiation will need to be decreased and stretched over a longer period. We are thinking he may go to Aunt Judy's for the immediate future...we'd like to see him a little more steady on his feet. Still not sure when they'll let him go...maybe Tuesday or Wednesday.

He is truly touched by all the wonderful cards and visits from so many people. Thank you so much for caring and please continue to pray for good health and spirits.

Saturday, April 4, 2009

Getting Started...

Thank you so much for all the positive thoughts and prayers sent our way. We are so thankful to have so many people caring about our family.

Here is a little back story and update for you if you're interested. My father, Les, is a very active 65 year old. He loves playing golf, traveling and playing bridge. He has a colorful health history with 2 stints in his heart, 2 bouts of bladder cancer, several skin cancer spots removed, almost 50 years of smoking, etc.

About six weeks ago, he started complaining of pain in his neck on the right side. After several days of severe pain, he self diagnosed himself with shingles. He got little sympathy from my mother, who has had them in the past and didn't believe he really had them. About 3 weeks ago after getting back from Palm Springs, my mom shared her concerns that he was sleeping all the time, was very off balance during their rounds of golf, and was having some forgetful moments. She encouraged him into seeing his cardiologist, and he was going for a stress test on the 30th. He did see a GP, but told the dr. he had shingles, and the doctor believed him. No other testing was done.

Last weekend, he began throwing up. The pain in his head/neck never stopped, and he really couldn't walk without hanging on to something. He was adamant about not seeing another dr. until his stress test to rule out his heart. Finally my mom took him to the er on Sunday. They did a CAT scan and diagnosed him with having mini strokes. After being admitted, they did several tests and found his heart/structure was good. The corotid arteries were also okay. The MRI/MRA later revealed that they weren't really strokes, but metastasized tumors. The next morning we found out it wasn't just 3 tumors but multiple. (I counted 12ish). A CAT scan later showed that the primary source is from his lung. (His mother also had lung cancer, although she never smoked.) The tumor there is 4.6 cm x 2.8cm. :( I guess a 1cm spot takes about 200 days to develop, but then doubles in size in that same amount of time. It could have gone undiagnosed for a long time since it wasn't blocking an airway. The spreading was the only indication.

A PET scan revealed another tumor on his spine (the neck pain), in his adrenal gland, a node on his liver and one behind his breast bone.

Radiation of the head/neck will be our main priority. They need to get those under control first. He has completed 2 of the 16 treatments. Then, chemo alone or chemo and radiation will be done on the lung and other areas.

His spirits are okay...he is most concerned with not finding the right words or answers to questions. We are not sure if that will come back yet or not. We are a very faithful family and know everything is ultimately in God's hands. We would appreciate all prayers for an outcome that would allow him to enjoy his life the way he used to. We don't really need anything other than that.

P.S. Please always use sunscreen and don't tan, as melanoma is the 2nd most likely way to have cancer spread to the brain. Get all spots/moles checked NOW. Stop smoking and encourage those around you to stop. Lung cancer is the #1 cause of spreading to the brain.